0 comments

  1. Matt says:

    I am glad that I tried looking up the EP site to instead find this. EP is, was and will always be the finest of all social networking sites. Bar none.

  2. I always just thought I had “terminal acne” — I suffered stage 4 acne, the full-on boils, since the age of 11 — and it’s bad enough to be cursed with this horrible form of acne for the pain and the unsightliness of it during your pubescent and adolescent years, nevermind dealing with the comments of your peers, such a “pizza face,” “crater face,” etc — but even when I grew up, though it did lessen somewhat, it never went entirely away, and at different points in my life, I’ve suffered the huge, deep, painful boils not just on my face, around my ears, and on my throat, but in my armpits, groin, inner thighs, and even occasionally my vulva — truly an exercise in learning to tolerate pain.

    I really did think it was just some weird form of acne, but one day a few years ago, my son happened across this “hidradenitis suppurativa,” and I realized immediately that this is what I have long suffered — the boils which join up under the skin and become giant carbuncles, leading to pitted scars which never entirely go away, but still retain the capacity to become once more engorged with sebum until the pocket ruptures beneath the skin and then becomes filled with pus — and agonizing pain. Stress seems to make it worse; since I have switched to vaping instead of smoking, it seems to have improved slightly; maybe just because my overall health is much better. I’ve never suffered much in the way of excess weight, but I can see how that could definitely make it worse; when my breasts got bigger during pregnancy, I developed one of these awful things under one of them; fortunately it had resolved before my child was born so I was able to successfully nurse him.

    My empathies and sympathies go out to any others who suffer this awful condition; it is so intolerably painful, and so embarrassing, having these awful painful things in such private areas of the body, which can’t really be shared or explained to any except one’s closest family members and perhaps closest friends. Maybe one day science can figure out a better way of dealing with this ungodly affliction.

  3. John McCloud says:

    Damn used to use it all the time in my teenage years just thought of it today only to see that it’s shutting down 🙁

  4. Karen Lange says:

    Good point, Grace! I think there are many who’d be more interested in science if publications were a little more user friendly. Sure, there’s a need and place for the technical, but most average readers don’t have the time to dissect and translate the info as to how it applies to everyday living. A speaker I heard years ago at a homeschool conference encouraged parents to look in the children’s section of the library if they needed a breakdown and better understanding of a topic. I thought this a great idea, not just for homeschool parents, but for everyone wanting a greater understanding of a particular subject. It gives us a starting place and important basic info. I could see similar applying to your point here.

  5. Kristy Dyroff says:

    It’s interesting that you can form an opinion based on uninformed speculation and governmental bias. EP was shut down because of the deluge of government search warrants and subpoenas they were being forced to answer. These were for the names of the members posting anonymously to place their ads for illegal drugs causing the deaths of at least dozens, or possibly hundreds of deaths. EP had a responsibilty to minimally police their site st least to close groups named “I Love Heroin” and “Heroin, Heroin, Heroin” which included open offers of drugs for sale including the type, price and phone number of the dealer. When there is an opioid epidemic in this country killing 144 people every day, and EP can’t be bothered with monitoring bad actors on their site, they can blame the government, but they’re to blame. All this ridiculous speculation about advertising data is just wrong. They didn’t even bother to take down the ads after knowing the posters were being investigated for murder. Good for you that you didn’t participate in the ugly part of EP, but it’s saving hundreds of lives that they are shut down.

  6. Rebecca says:

    Hi Ali, remember me? You took advantage of me and pretended to be my friend. I guess your lying paid off though since you got this success. Congratulations, hope it made you an honest person. Or you only lied to me since my role in life IS scapegoat.

  7. Rebecca says:

    Hey Ali, remember me? You lied to me for what reason I don’t know and when you were caught you ended the relationship. I guess your lying paid off though since you got a job. Congratulations *sarcasm*.

  8. Would you want your surgeon to yawn in the middle of an operation? Your bus driver in the middle of a trip? I don’t know about you, but your answers indicate to me that sleep matters.

  9. I am Buzzlightyear says:

    I have read much about government surveillance, advertising companies collecting data, and so forth.
    I have never heard of the set of circumstances described together in this fashion.
    A new level of disturbing………

  10. Cd3dnw says:

    NO!! I have been on EP on and off to play and for some sort of therapy. The government destroys everything they touch. The older I get the more I understand anarchists.

  11. Lisa Ehrman says:

    Thanks for sharing your Homeschool Book review with us at Homeschool Memos Linky Party. it was interesting and made me want to check it out, even though my boys are older now. Hope you’ll link up again 🙂

  12. Lisa Ehrman says:

    Really great article and posed problems I hadn’t heard of before. (The new generation with all the stimuli being educated in such an old-school way) As an educator, that’s where my focus stayed. Hmmmm. Thanks for sharing at Homeschool Memos Linky Party!

  13. edl says:

    thats so sad,i used to ask some silly questions and people were really nice and not fake in ep

  14. conceptualclarity says:

    Hi Ali, I’m a fellow EP user and although I didn’t expect this at all, I am feeling very shaken by the shutdown that has occurred this evening after this website was a part of my life for 6 1/2 years. However I am really skeptical of the official explanation. I think the most important fact I have seen pertinent to the shutdown is Armen Berjikly’s Feb. 2016 statement that “Kanjoya’s technology was originally based on the Experience Project.” (http://www.huffingtonpost.com/charu-sharma/going-against-the-flow-ar_b_9233684.html) We thought Kanjoya was still dependent on Experience Project data mining, and the revelation that Kanjoya no longer needs EP looks pretty significant. Most longtime EP users I’ve spoken to are mindful of the fact that EP management has been systematically dismantling the features of the website since mid-2012, and were agreed that the website had become a shadow of its former self. Censorship on the website implemented in 2013 was very unpopular with the members. It appears that as Armen has been feeling his oats with the Kanjoya business enterprise, EP has been an orphan for a long time. I think there just wasn’t an interest on the part of the owner in doing what was necessary to make EP more viable. By spending years butchering the website, management greatly reduced its traffic and popularity and thereby made it less viable.

    Another thing that makes me doubt the official explanation about the government driving EP out of business is the fact that as soon as the end of EP was announced, there was a mad dash by a number of camps to put out replacement sites. Some of these are destined to fail. One called SimilarWorlds did a great job marketing itself on the EP website; if its founders are up to the task, they will have a great chance to absorb a large portion of EP’s clientele.

    I really, really hope there will be a good replacement for EP. I have no use for Twitter and scarce use for Facebook. An anonymous website that allows one to write material as lengthy as one pleases has great advantages.

  15. What makes Musk one of the (if not THE) most impressive entrepreneurs of our days?

    Is it that he built multiple multi-billion dollar businesses? Or that he is trying to solve some of this planet’s problems while also colonising Mars?

    I think that’s is his willingness to put it ALL on the line.

    See the best nuggets (quotes) from this book along with our short review for nugget here: http://www.getnugget.co/elon-musk-an-unique-driven-mind/

    • Thank you for this! I don’t know why I didn’t see it before, but this is an awesome addition to our discussion.

      And, you’re quite right. Musk is willing to put everything on the line — including his health and sanity — which makes him highly impressive.

  16. Insanitek says:

    Despite the worries of amateurs delving into things and creating monsters, there are good things that can come about. Like Mrs. Goodsell, who found the cause for Charcot–Marie–Tooth, an uncurable, unstoppable disease that deteriorates the body nerves, leaving you stripped of all feeling and weak, among other things.

    DNA is complex with lots of cross paths, but sometimes it’s possible with a careful, considered approach and the full story to see the whole thing and possibly do something about it.

    http://www.bbc.com/future/story/20140819-the-amateur-who-surprised-science

  17. Tamara says:

    Greetings from Ohio! I’m bored to death at work so I decided to browse
    your website on my iphone during lunch break.

    I love the info you provide here and can’t wait
    to take a look when I get home. I’m surprised at how quick your blog loaded on
    my phone .. I’m not even using WIFI, just 3G ..
    Anyhow, superb site!

  18. Amelie says:

    Hey there I am so excited I found your site, I really found you by accident, while I was researching on Bing for something else,
    Anyways I am here now and would just like to say
    kudos for a marvelous post and a all round exciting blog (I also love the
    theme/design), I don’t have time to read through
    it all at the moment but I have bookmarked it and also added in
    your RSS feeds, so when I have time I will be back to read a great deal more,
    Please do keep up the superb job.

  19. bruno says:

    It is truly a nice and helpful piece of info. I am happy that you shared this helpful info with us. Please stay us informed like this. Thanks for sharing.

  20. Brianna says:

    I take pleasure in, result in I discovered just what I was taking a look for. You’ve ended my four day long hunt! God Bless you man. Have a nice day. Bye

  21. Igor says:

    Hello,

    CAn you tell me about your experience with them and how much fees came out of your pocket. Up-front fees? Royalties?

    Thank you very much

    • Cat says:

      We actually choose not to go with Patently Brilliant. Their customer service is nice, but they gave us the run around. They kept promising that we could combine our people together to give them a hefty discount that might have been worthwhile. As the time came, they renigged on all the promises that would have drawn us in.

      However, they charge $549 per patent search. That only looks for prior art. Then, they tell you if you have a patent filing case on your hands, and which type of patent you can apply for. To have them file it, it costs over $2000 for the cheapest patent option (which may or may not be the one you need), if I recall correctly. I don’t recall how much the most expensive was, but I know it was well over $10000.

      They want all fees upfront.

      Out of all the patent companies we have come across, it is always this way. Patently Brilliant was the first one that would have worked with our inventors individually, but given them a group discount rate if they had come together — at least that was until they changed their minds. The one good thing I can say about them is that they are cheaper than all the other patent companies we’ve talked to (and I think we’ve talked to most of them by now).

      I know that the board and myself have chosen to hire a patent lawyer and do a bunch of DIY patent searches and filing webinars. This is still in progress as we’re making sure we have the most up to date info on how to do-it-yourself. It will save our inventors money, give them a little more pride in what they do, and the ability to say, “I did it myself.”

      I hope this helps you make the right decision for you.

  22. Karen Lange says:

    FYI: The book is officially out now and available on Amazon and Barnes and Noble. Details about the tour to follow soon! Thanks again for hosting me here. 🙂

    • Cat says:

      Homeschooling is an important option for parents to understand. I hope many of them get to read your book and spread the news and love of homeschooling.

    • Alesi says:

      That it does. Some of the greatest discoveries, like rubber and Teflon, were discovered on accident.

  23. Karen Lange says:

    Thank you, Grace, for your honest and kind assessment of the book. My hope is that parents use this as a springboard to customize their own experience, homeschool co-ops or otherwise. 🙂

  24. I truly value Karen’s friendship, advice and her most lovely personality. She’s such a super friend. Her book will be a companion to me for a long time to come. 🙂

  25. Karen Lange says:

    MaryAnn,
    Thank you for your kind words and support. 🙂 You have helped my writing journey tremendously!

    Dawn,
    Thank you so much! Thanks also for sharing this with your homeschool group. 🙂

    Happy homeschooling,
    Karen

  26. Thank you for this insightful post. I’ve known Karen for many years. She is highly respected in homeschooling circles. She is also a wonderful writer.

    Dr. MaryAnn Diorio
    Novelist & Poet

  27. Thank you for this insightful post. I’ve known Karen for many years. She is highly respected in homeschooling circles and is also a wonderful writer.

    Dr. MaryAnn Diorio

Leave a Reply